INCTR Brasil Annual Report 2016
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Branch: INCTR Brasil
President: Sidnei Epelman
Board Members: Claudia Epelman
Volunteers/Employees:
Collaborators:
Partners: The Brazilian Branch of INCTR is working to help coordinate programs in Latin America, particularly in Pediatric Oncology and Palliative Care. The branch has a major role in training and education in clinical trials management, as well as, in fostering the development of health care professionals involved in the psychological/multidisciplinary support of cancer patients. As associated Institutions INCTR Brasil, TUCCA - Association for Children and Adolescents with Cancer - and the Department of Pediatric Oncology, Santa Marcelina Hospital, put into practice INCTR international directives, and have become a worldwide benchmark for Pediatric cancer treatment, Clinical Research and Palliative Care.
Address: INCTR- Escritório de Representação Brasil
Av. 9 de Julho, 4275
Jardim Paulista
CEP 01407-100 S
São Paulo,
SP,Brasil

Tel.: (011) 3887 0593 Fax (011) 3885 7995
Country(s): Latin America
Year Established:
Annual Report: o Pathology Program

 Central pathology review / Molecular Pathology Laboratory

The central pathology review was created, mainly, because in Brazil the mortality caused by cancer is high when compared with other countries In Europe and USA.
To date, over 500 samples have been reviewed.
The results obtained so far, which were presented at the 17th ISPNO, June 12 - 16, 2016, in Liverpool, strongly suggest the value of central pathology review in the childhood cancer management, decreasing mortality rate.

 Clinical Trials

Development of pathological and radiological review for Brazilian patients with Brain Tumor a in partnership with SOBOPE Brazilian Society of Pediatric Oncology

o Palliative Care (PAX)

 TUCCA Hospice Francesco Leonardo Beira

As part of its overall mission to provide care and treatment to children and adolescents with cancer, TUCCA (Association for Children and Adolescents with Cancer) inaugurated the newly constructed TUCCA Hospice Francesco Leonardo Beira, the first pediatric hospice in Brazil, on 1st October, 2012. Patients are admitted to the hospice for end of life care, such as comfort measures and any other treatment recommended by the multidisciplinary team in the company of his/her family. The service is free and covers the costs of all aspects of care regardless of the duration of time in the hospice. The family is also given bereavement support after the death of the patient.

The hospice concept, although widespread in European countries such as England and the Netherlands, is not known in Brazil, so that TUCCA, a national association which supports children with cancer and which partners with INCTR, has brought the first Hospice to Brazil – to a very poor area in the East Zone of São Paulo.

The Hospice has sufficient space to fully meet the needs for end-of-life care of children dying from cancer in the Hospital Santa Marcelina, This is approximately 20% of patients treated by the pediatric oncology department at Hospital Santa Marcelina, since about 80% of patients with cancer are cured.

The hospice also has a recreational area, dining room, nursing station, and offers various activities for patients and their families.


 Multidisciplinary Practice of Pediatric Oncology : Palliative Care Symposium

Held during the XV Congresso Brasileiro de Oncologia Pediátrica (Brazilian Society of Pediatric Oncology Congress) November 2016, Rio de Janeiro, RJ


o Scientifical and Technical Cooperation Agreement by developing links with cancer centers and oncologists/scientists in Brazil. The Brazilian Branch has a major role in pediatric oncology and pediatric palliative care. This ongoing program covers institutions across the country.
Future Plans: New Project

Advanced Oncology Research Project

This initiative is in partnership with FASM Faculty of Medicine, Santa Marcelina Hospital, INCTR Brasil and the Department of Pediatric Oncology, Santa Marcelina Hospital.

o 1st. initiative: Molecular Pathology Laboratory
Publications:
Month: 01
Year: 2016
Date of Last Report: 2015
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