INCTR Brasil Annual Report 2017
TUCCA_13_04-20.jpg
width="300px"

Branch: .INCTR Brasil
President: Sidney Epelman
Board Members: Claudia Epelman
Volunteers/Employees:
Collaborators: See below for listing
Partners:
Address:
Country(s):
Year Established:
Annual Report: The Brazilian Branch of INCTR is working to help coordinate programs in Latin America, particularly in Pediatric Oncology and Palliative Care. The branch has a major role in training and education in clinical trials management, as well as, in fostering the development of health care professionals involved in the psychological/multidisciplinary support of cancer patients.

 Advanced Oncology Research Center

Molecular Pathology Laboratory
This initiative is in partnership with FASM Faculty of Medicine, Santa Marcelina Hospital, INCTR Brasil and the Department of Pediatric Oncology, Santa Marcelina Hospital.

Central pathology review

The central pathology review was created, mainly, because in Brazil the mortality caused by cancer is high when compared with other countries. In Europe and USA.
To date, over 600 samples have been reviewed.
The results obtained so far, which were presented at the 17th ISPNO, June 12-16, 2016, in Liverpool, strongly suggest the value of central pathology review in the childhood cancer management, decreasing mortality rate.

 Clinical Trials

Development of pathological and radiological review for Brazilian patients with Brain Tumor a in partnership with SOBOPE Brazilian Society of Pediatric Oncology

 Palliative Care (PAX)

Main projects/initiatives:


 Multi-institutional collaborative studies of childhood leukemias in partnership with the National Institute of Cancer (INCA):
Contribution of Immunohistochemical molecular markers in the distinction between their subtypes and etiopathogenic risk factors.

This national project intends to establish an algorithm of tests (immunophenotypic and molecular) in order to improve the survival rates of children, adolescents and young adults with acute leukemias in Brazil. Over 500 samples analyzed so far.


 Advanced Oncology Research Center

Molecular Pathology Laboratory
This initiative is in partnership with FASM Faculty of Medicine, Santa Marcelina Hospital, INCTR Brasil and the Department of Pediatric Oncology, Santa Marcelina Hospital.

Central pathology review
The central pathology review was created, mainly, because in Brazil the mortality caused by cancer is high when compared with other countries In Europe and USA.
To date, over 600 samples have been reviewed.
The results obtained so far, which were presented at the 17th ISPNO, June 12-16, 2016, in Liverpool, strongly suggest the value of central pathology review in the childhood cancer management, decreasing mortality rate.

 Clinical Trials

Development of pathological and radiological review for Brazilian patients with Brain Tumor a in partnership with SOBOPE Brazilian Society of Pediatric Oncology

 Palliative Care (PAX)

TUCCA Hospice Francesco Leonardo Beira
As part of its overall mission to provide care and treatment to children and adolescents with cancer, TUCCA (Association for Children and Adolescents with Cancer) inaugurated the newly constructed TUCCA Hospice Francesco Leonardo Beira, the first pediatric hospice in Brazil, on 1st October, 2012. Patients are admitted to the hospice for end of life care, such as comfort measures and any other treatment recommended by the multidisciplinary team in the company of his/her family. The service is free and covers the costs of all aspects of care regardless of the duration of time in the hospice. The family is also given bereavement support after the death of the patient.

The hospice concept, although widespread in European countries such as England and the Netherlands, is not known in Brazil, so that TUCCA, a national association which supports children with cancer and which partners with INCTR, has brought the first Hospice to Brazil – to a very poor area in the East Zone of São Paulo.

The Hospice has sufficient space to fully meet the needs for end-of-life care of children dying from cancer in the Hospital Santa Marcelina, This is approximately 20% of patients treated by the pediatric oncology department at Hospital Santa Marcelina, since about 80% of patients with cancer are cured.

The hospice also has a recreational area, dining room, nursing station, and offers various activities for patients and their families.


 Scientifical and Technical Cooperation Agreement by developing links with cancer centers and oncologists/scientists in Brazil. The Brazilian Branch has a major role in pediatric oncology and pediatric palliative care. This ongoing program covers institutions across the country.

On-going Projects:

INCTR Brasil is coordinating or participating in a number of projects including:

o Development of a Centre of Excellence in Pediatric Oncology at the Santa Marcelina Hospital

o Access to Accurate Cancer Diagnosis

o Retinoblastoma Early Diagnosis Campaign

o Palliative Care: Establishment of a palliative care program, with a focal point for training and institutional care at Santa Marcelina, and training of primary care physicians in this region of 5 million poor people.

o Psychosocial: Coordination of an Educational Program together with the Brazilian Society of Pediatric Oncology – SOBOPE
Future Plans:
Publications:
Month:
Year: 2017
Date of Last Report: 2016
Image 1: file:tucca-13-04-20-2/TUCCA_13_04-20.jpg
Image 2:
Document:

Unless otherwise stated, the content of this page is licensed under Creative Commons Attribution-ShareAlike 3.0 License