INCTR Brasil Annual Report 2014
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Branch: INCTR Brasil
President: Sidnei Epelman
Board Members:
Volunteers/Employees:
Collaborators:
Partners: SUBOPE
TUCCA
Hospital Santa Marcelina
Address:
Country(s):
Year Established:
Annual Report: o Clinical Trials

Development of pathological and radiological review for Brazilian patients with Medulloblastoma in partnership with SOBOPE Brazilian Society of Pediatric Oncology

 Early Diagnosis / Retinoblastoma Campaign


TUCCA (Association for Children and Adolescents with Cancer) and INCTR Brasil have succeeded in having September 18th declared the “National Day of Awareness and Encouraging the Early Diagnosis of Retinoblastoma” in Brazil. To gain the attention of the people of Brazil about the importance of the need for early diagnosis of retinoblastoma, TUCCA and INCTR Brasil cooperated with many other organizations in order to send a strong message to the Brazilian public on September 18th about the importance of the early diagnosis and treatment of children with cancer. One of the most notable events was held at night when the lights which illuminate the monument of Christ the Redeemer, which stands some 38 meters high atop the Corcovado Hill in Rio de Janeiro, were switched off for several minutes to draw attention to the blindness caused by retinoblastoma. A video of this event can be seen on http://vimeo.com/49922782.

The expertise in the treatment of Retinoblastoma was shared by Dr. Epelman in two international meetings:

 The 100 years of the Retinoblastoma Program Of Memorial Sloan-Kettering Cancer Center”, a two-day meeting held in September during which retinoblastoma experts from around the world presented case studies and discussed the latest treatments for the disease

 One Retinoblastoma World Meeting held from 25 to 28 October, in Toronto, Canada.


o Palliative Care (PAX)

 TUCCA Hospice Francesco Leonardo Beira

As part of its overall mission to provide care and treatment to children and adolescents with cancer, TUCCA (Association for Children and Adolescents with Cancer) inaugurated the newly constructed TUCCA Hospice Francesco Leonardo Beira, the first pediatric hospice in Brazil, on 1st October, 2012. Patients are admitted to the hospice for end of life care, such as comfort measures and any other treatment recommended by the multidisciplinary team in the company of his/her family. The service is free and covers the costs of all aspects of care regardless of the duration of time in the hospice. The family is also given bereavement support after the death of the patient.

The hospice concept, although widespread in European countries such as England and the Netherlands, is not known in Brazil, so that TUCCA, a national association which supports children with cancer and which partners with INCTR, has brought the first Hospice to Brazil – to a very poor area in the East Zone of São Paulo.

The Hospice has sufficient space to fully meet the needs for end-of-life care of children dying from cancer in the Hospital Santa Marcelina, This is approximately 20% of patients treated by the pediatric oncology department at Hospital Santa Marcelina, since about 80% of patients with cancer are cured.

The hospice also has a recreational area, dining room, nursing station, and offers various activities for patients and their families.


o Round Table: CNS tumors - advances in diagnosis and management

INCTR Brasil in conjunction with the Department of Pediatric Oncology, Santa Marcelina Hospital, held a Round Table on CNS tumors - advances in diagnosis and management, during the XIV Brazilian Congress on Pediatric Oncology, held in Brasilia, November 27th to 30th, 2014

Mark W. Kieran, MD, PhD, Director, Pediatric Medical Neuro-Oncology, Dana-Farber Cancer Institute participated as guest speaker.

o Oncology in Adolescents Book launch during the XIV Brazilian Congress on Pediatric Oncology, held in Brasilia, November 27th to 30th, 2014.
Future Plans:
Publications:
Month: Jan 01
Year: 2014
Date of Last Report:
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